Parenting can be a challenging experience, demanding physical, mental, and emotional energy from individuals. When faced with managing a chronic condition like multiple sclerosis (MS), the task of raising children can become even more daunting.
MS stands as one of the prevalent neurological conditions affecting young adults, with nearly one million individuals in the United States grappling with its impact. Notably, MS exhibits a higher prevalence among individuals designated female at birth compared to their male counterparts, as reported by the National Multiple Sclerosis Society.
While MS can manifest at any point in life, it frequently emerges between the ages of 20 and 40, according to insights from Penn Medicine. This timeframe coincides with the prime parenting years for many Millennial women (born between 1981 and 1996) who are currently navigating the complexities of parenthood while managing MS.
For those who have recently received an MS diagnosis and are seeking guidance on how to navigate parenthood under these circumstances, it is essential to recognize that you are not alone. In the following sections, fellow mothers generously share their personal encounters and invaluable advice on parenting while coping with MS.
The Struggles of Motherhood with MS
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LeQuanna Brown, diagnosed with relapsing-remitting MS in 2001 shortly after the birth of her first child, reflects on the challenges she faces as a parent living with MS. At 42 years old and a mother of two, she acknowledges the compromises she has had to make in her parenting journey due to the limitations imposed by MS. Brown articulates, “Some days, I can’t physically get myself out of bed to do daily chores like cooking and cleaning, which can be depressing.”
Dr. Barbara Giesser, a neurologist and MS specialist at Pacific Neuroscience Institute at Providence Saint John’s Health Center in Santa Monica, California, highlights that debilitating fatigue ranks among the most prevalent symptoms of MS. This fatigue can significantly impact various cognitive and physical functions, exacerbating the challenges faced by individuals managing the condition.
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Verena Frydberg, diagnosed with secondary progressive MS in 2001 and a mother of two teenagers, underscores how issues with mobility, including balance and movement, can complicate routine parenting responsibilities. Frydberg shares, “MS has impacted my ability to walk and use one of my arms and hands, making simple tasks like doing the dishes more challenging.”
The unpredictable nature of MS adds an additional layer of stress for many mothers, as symptoms can fluctuate without warning. Dr. Giesser explains that the variability in symptom presentation can make certain days particularly demanding for individuals with MS, heightening the daily struggles they face.
Effective Parenting Strategies for Mothers with MS
If you are a mother navigating the complexities of parenthood while living with MS, consider implementing the following strategies endorsed by experienced mothers in similar circumstances:
- Prepare Meals in Advance: Anticipate your needs by prepping meals ahead of time to alleviate last-minute rush and unnecessary stress.
- Allocate Extra Time: Factor in additional time for tasks to accommodate the impact of fatigue and prevent feelings of exhaustion and overwhelm.
- Prioritize Tasks: Identify essential tasks on your to-do list and seek assistance for non-urgent responsibilities to manage your workload effectively.
- Conserve Energy: Collaborate with physical or occupational therapists to learn energy-saving techniques and optimize your productivity based on your energy levels.
- Schedule Doctor’s Appointments Thoughtfully: Arrange for support to care for your children during medical appointments to ensure uninterrupted focus on your health needs.
- Utilize Grocery Delivery Services: Simplify shopping tasks by utilizing online grocery services or delegating this responsibility to others.
- Maintain Ready-to-Eat Options: Keep convenient meal choices available for days when fatigue hinders meal preparation, and involve family members in cooking duties.
- Prioritize Self-Care: Embrace moments of relaxation and personal time to rejuvenate your energy and well-being, no matter how brief.
- Seek Transportation Assistance: Organize alternative transportation arrangements for your children to reduce the burden of constant chauffeuring.
- Encourage Family Participation: Involve your children in household chores and cultivate a culture of mutual support and contribution within the family.
- Consult Your Neurologist: Discuss concerns about fatigue and explore potential underlying causes or exacerbating factors with your healthcare provider for tailored guidance and support.
By implementing these practical tips and fostering a supportive environment, mothers with MS can navigate the intricacies of parenting while prioritizing their well-being and effectively managing their condition.